 Meet
other families. The
goals of our online community is to provide a forum where special needs families can meet and share information, stories, questions, concerns
and support. We welcome you to join our online Family
e-Group. You are not alone. Come join us!
This website is dedicated to my daughter Monica, who was born with a life-threatening neural tube defect, called an occipital encephalocele. This encephalocele contained a substantial portion of her brain, and we were given a dire prognosis. On Christmas Eve, two days after birth, Monica underwent surgery. After 6 hours, Monica survived the brain surgery - our own Christmas miracle!
Monica is now 23 years old. Despite multiple disabilities (cortical blindness, cerebral palsy, developmental delays, and a complex partial seizure disorder), Monica is rarely ill and has tremendous motivation, continuing to learn and enjoy life. Monica is a delight and inspiration. |
